I don't have too many changes to report today, which is a good thing I suppose... He hasn't thrown up at all since I posted yesterday, so we're still excited about that. The numbers they use to measure pancreas function are getting higher every day, so we're pretty certain that pancreatitis is the culprit. There are conflicting views on whether or not to feed through it, so the doctors are playing conservative and only giving him 2 cc's an hour of breastmilk. So far, he seems to be tolerating that amount pretty well, and we'll see how he does with larger amounts tomorrow. They are concerned about the numbers, but since a "treatment" doesn't exist, we just have to wait it out.
They've kept most of his medications the same- just a few small changes- and they gave him another blood transfusion today. He didn't have as bad a reaction as last time, but that's probably thanks to the Benadryl they gave him with the blood. They've been doing CPAP trials with his vent all day, and will continue trying to lower the settings... If all goes well with that, they're going to attempt extubation in the morning. We have no idea how that's going to go, since he's failed extubation twice already, but we do have to give him the chance and see how his heart reacts. The biggest issue is going to be the pressures... With the vent he has positive pressure going to his lungs, and once we take the vent away, fluid may back up again. This is our chance to see if he'll be able to make it to a transplant without vent support, or if he'll have to stay on the vent indefinitely. I'm praying for the first option!!
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