Day 71

The big news today is we're moving to the floor... Let's hope that everything works out this time, and we can stay there! Holden still seems to be feeling about the same, a little out of sorts but nothing huge. He's still throwing up quite a bit, but that's probably due to his stomach being stretched more than it's used to with the bolus feeds. We're going to keep them the same today and see how he adjusts (if he adjusts).

His xray looked a little better- not great, but better, so maybe the new diuretics are working to get some of the fluid out of his lungs. With all of this going on (the sweating, need for increased diuretics, etc), the doctors say that we're going to have to start working to manage chronic heart failure better than we have been. That makes the need for a new heart a priority for him. We don't like to be reminded that no matter how good he looks, his poor little heart is still broken, but reality has a way of setting in. We hope to keep him comfortable, and manage the heart failure effectively until that happens... Please pray for continued progress for Holden, and no setbacks once we're on the floor!

It's really hard to pray for a heart for him, because that means another momma's arms will be empty. It's heartbreaking no matter how you look at it. But it's also the most precious gift a family can give, and we pray for the perfect heart to be generously given to him in His perfect time. We already know prayers are answered... We are reminded daily that he is a miracle!