This poor baby has had a rough start to his day... Although it's still a better day than what we've had earlier in the week! He's still doing really well on the Vapotherm, and we've been able to wean him down to 25% oxygen and only 6 LPM... I know some of you have no idea what I'm talking about, but trust me, it's good news. :) If he continues to progress this well, we might be able to get him off the Vapotherm and on regular oxygen soon. His lipase count was also down this morning, in the 400's. I'm trying not to get too excited, since pancreatitis is fickle and can go up and down in a matter of hours, but I'm really loving watching the numbers go down every day! Still praying for that downward trend to continue...
He's had a series of little mishaps throughout the day that are making his life miserable today... He's been in pain since about 2am last night, and we don't really know why. I think it's his stomach, but since he can't tell us, all we can do is guess... The doctors said even with his numbers going down, the pain from pancreatitis can last for weeks after the numbers are normal, and it will come and go with no warning or pattern. That just really sucks for my little man... We ended up giving him morphine this morning, because he was so pathetic crying and whimpering. That's the first dose of morphine he's required all weekend. He's a lot tougher than most adults I know, that's for sure!
It's a good thing we gave him the drugs when we did, because he pulled out his NG tube, and we had to get that back down. It's a more involved process getting it down into the intestines vs. the stomach, and it takes a few attempts and adjustments. To say babies don't like the process is putting it mildly... In the middle of that, we discovered his new ART line wasn't working, so we had to cut the sutures and pull that out too. I had the choice job of holding him down for all of this while he cried and begged to be let up. My heart is still a little broken. :( The tube is still not down where it needs to be, but he's taking a little break and napping right now. We'll deal with the details later...
The response we got regarding the Bumbo seat was amazing, thank you all! Our sweet friend Lindsay offered to give us hers, which even comes with a tray (for his books, she says :)... Thank you Lindsay!
And a few pictures from our week... I'm ready to get a few of him out of his bed! Maybe soon. :)
The start of our week, with the dreaded tube back in the picture.
His club hand- the result of a badly placed IV, which didn't last more than a day... (To clarify, the IV was fine, it was just a poor choice to put it in his hand once he's off sedation.)
NOT happy about his bath this time.
He loves to sit up and play with his toys, but he's so weak he only lasts for a couple of minutes.
Tuckered out after the morning's mishaps...
Even in a hospital bed, he still manages to jumble himself all over the place.
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