Friday, January 21, 2011

Day 82

We're still holding the course here. Holden's vomiting has improved slightly, and he doesn't seem to be in as much pain as before. It is still an issue though, and we're all still trying to figure it out. We've started him on a new drug to increase digestive motility, and it's supposed to help empty his stomach faster so that he doesn't throw as much up. We'll use it through the weekend and see how much it helps. If the new medication doesn't do the trick, we'll run another test on Monday to check and test the contents of his stomach, and check the sphincters in his stomach. If those tests don't show anything to fix, the doctors say we'll have to assume it is the malrotation causing his digestive issues, and we're back to square one.

If it's the malrotation, we'll be between a rock and a hard place. The only fix is surgery, but he isn't strong enough from a cardiac standpoint to survive a surgery. He already has trouble gaining weight (all heart babies do), and constantly throwing up the calories he needs is a bad thing. He's also throwing up all of the meds needed to manage his heart failure, so that's something else to look at. We'll be trying a few different things to manage his vomiting as best as we can, and I'm hoping that some of these tests show something we can fix. I really don't want to worry about the malrotation and surgery until later. (I'd prefer never, but you can't always get what you want. :) Please keep praying for Holden this weekend- pray that we can find out for sure what's wrong with him, and find a way to fix it without a surgery. We truly appreciate the continued prayers... I don't know how we would have made it this far without them!

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