Here We Go Again

I don't even know where to start this time. We're back at Children's, and Holden has all kinds of crazy things going on. He hasn't really been acting right since we brought him home on Friday, and it got progressively worse through the weekend. Yesterday afternoon, he started crying and then screaming, and he didn't stop for six hours. He was clearly in a lot of pain, so we decided to bring him in to the ER. By the time we got here, he was hysterical and dripping sweat, and the pain was causing breathing issues. They got him in quickly, started an IV (not so quickly), and gave him some morphine for the pain. Thank God for the gift of morphine! He immediately calmed down and went to sleep, and the rest of the admission process went pretty well. We're on the 8th floor again, probably for a while. (And we ended up in the same room that we lived in for three months here... I don't know if I like that coincidence or not.)

They've run the full spectrum of labs on him, and the numbers are a mess. His BNP is almost 28,000 now, and we're still not sure why. He'll have another echo this afternoon to make sure his heart function hasn't deteriorated. His BUN and creatinine (kidney numbers) are both elevated- 71 and 1.0- and they've actually gotten worse since we started him on IV fluids last night. We've already talked to the renal doctors, and he'll have an abdominal ultrasound this afternoon as well. I don't know if that will show us anything, but it's worth a shot. His AST and ALT (liver enzymes) are also elevated, and we don't know why. The good news is that his electrolytes have remained fairly stable, and his amylase and lipase (pancreatic numbers) are normal. The doctors were concerned that we might be dealing with pancreatitis again, given his level of pain yesterday, but that's been ruled out. He still has the c-diff infection, and it doesn't seem to be responding to the antibiotic he's on. We'll talk to that team later today, and hopefully come up with a new plan.

So we're here again, with more questions than answers, and it's still as maddening as it's always been. We have a lot of doctors on a lot of teams working on different parts of the puzzle. I hope and pray they can find out what's going on and provide my little man with some comfort. As always, we are so grateful for your continued support and prayers.