Day 50

We're going back and forth between a good/bad day today... He's been in a lot of pain with his pancreatitis last night and today, so he's been drugged up with morphine most of the day. It's still not taking it all away, so he's still not feeling very good. His lipase count was back up in the 700's this morning... He's still NPO, so we're not sure why it's rising again. It may be due to his feeds going into his stomach when he pulled the feeding tube out the other day, and it may be getting aggravated worse by the meds that have been going to his stomach as well. The good news is that we finally got the NG tube placed down in his intestines where it belongs, this afternoon, so hopefully those problems will correct themselves now. Once the pancreas is agitated though, and the enzymes become active again, it takes a while for things to level out. So he has a long road left ahead of him, just with his pancreas, poor baby. :( 

Heart-wise, he's still the same... Holding his own and waiting for a new heart. He's still doing great breathing on his own too... His sats have stayed pretty high the past 24 hours. If he wasn't so miserable, this might have been a good week... It's so heartbreaking to see him like this!

I took a bunch of pictures yesterday afternoon and evening, when he was still feeling pretty good... I'm hoping we can get back to this tomorrow!!

This is what guilty looks like... He managed to tangle himself up in the lines. He isn't supposed to mess with those IV's at all, and he knows it too.

 Our sweet friend Lindsay sent some new books along with his Bumbo seat... This kid loves to read!

 We LOVE the Bumbo! I've been keeping him entertained with all of his new Christmas toys. :)

 I swear he's happier than he looks here... He loves his new cars.

 Granny B brought some more stuff for him too... His first stocking...

 And presents under his tree. :)