Day 61

Yesterday was both a really good and really bad day... The girls were here, and we got to do their Christmas (finally!). They had a great time, and I loved being able to spend time with them. I'll post some pictures at some point, when I find my cord to upload them. I'm hoping to take them to do something fun this afternoon, if Holden is stable enough. I want them to have a good time, even in these circumstances.

Unfortunately, Holden has been having some trouble in the middle of everything. He went down for a CT scan yesterday afternoon, and started having more trouble breathing when he was on his way back. It got pretty bad, and we were told they'd have to re-intubate him. We put him back on Vapotherm and VPAP, trying anything to avoid the breathing tube. The doctors weren't terribly optimistic, but over time through the night, he's managed to control his breathing a little more. It looks like we'll be able to get away with not going back on the vent for now. We still have no idea what's happening... Last time he had the flash pulmonary edema, we were able to pinpoint a specific drug that caused it, but we don't have a smoking gun this time. He has all of these symptoms- like the sleepiness, breathing issues, sweating, temp fluctuations, etc.- and he's a total puzzle. His echo didn't show any major changes in function, his CT scan didn't show any major bleeds... We're all stumped. So please pray for Holden and his doctors today... We need to figure out what's going on!