Today found me in much better spirits, thankfully. We had a pretty busy day... I'll get the medical junk out of the way first. While the doctors go round and round trying to decide what to do, it looks like we'll be waiting at least a month or so before attempting to put him in for a surgery- if we even do it then. In the meantime, we're going to try a few different things with the NG tube he has in place now. We're going to try and get all of his calories in through the tube at night, and then pull the tube out every morning. This is both good and bad news... He'll be tube free during the day every day, which will help reduce his vomiting and also encourage him to eat more by mouth. The bad part is that we have to replace the tube- every single night. Ugh. I know there are other families out there who do this, and I'm hoping that it eventually gets easier, because right now it still pretty much sucks. However, we're willing to do whatever it takes to help Holden thrive, and it looks like this is our only option right now. So we'll suck it up and be thankful that we still have a little boy with us to worry over. He's more than worth it.
The best part of our day today was this afternoon... Ren Morrison of Ren Morrison Photography so generously came to the hospital to take Holden's one year photos. (As a side note, he doesn't have any tubes in his face at all in the photos. We pulled the feeding tube out this morning, and he was able to go without oxygen support the entire time we were taking pictures!) We LOVED her, and she took some amazing photographs. She has such a sweet, caring heart- and that totally comes through in her work. She's already posted one of the pictures on Facebook and tagged me in it. If we're not friends on Facebook, go to Ren's Facebook page to check it out. She has such a gift, and we're so blessed and grateful that she shared it with us!! She'll be putting more photos up within the week, and I can't wait to share the rest. :)
Not much has changed for Holden between yesterday and today, but I woke up this morning determined to have a new and better perspective- and I think it worked. I took a page out of Holden's book... Just keep smiling no matter what. Even when the world tells you that you've every right to complain, avoid it.
An optimistic spirit heals.
Isn't it amazing how much Holden has changed just since y'all got to the hospital? The 'teaser' picture is absolutely adorable! I can hardly wait to see the rest. So glad he was able to go without the tubes for the session. Looks like he might have enjoyed hamming it up. A great photographer with personality is priceless! We all smile with your heart today. It's good to hear your spirits have been up :) Love you ALL!
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