Day 120

It feels like a lot has happened since I last updated, yet I don't have any real updates... It's a strange feeling.

We kept the ng tube out all weekend, and of course Holden loved it. He didn't have any vomiting episodes (besides the ones we induced by gagging him with meds), and he was just a different kid in general. You can tell how much he's affected by the tube, poor baby. We did have to put it back in last night, since he didn't eat enough to make up for the calories lost in his tube feeds. Again, that part never stops sucking. Trent and I were both near tears having to put the stupid thing back in. Of course, once he had the tube back in, he started vomiting again. I think our answer has been made more than clear- The tube is the problem.

He was scheduled to have a ph probe test done today, to see if his reflux was bad enough to need a fundo procedure done along with the gtube. (The fundo- or Nissen- basically wraps the stomach around the esophagus and makes the patient unable to throw up.) After researching it over the weekend, we decided we were against him having that particular procedure done. The procedure has mixed results, and many times it causes more problems than it solves. Lord knows we don't need any new issues!

After having the ng tube out all weekend, we know for a fact that he only has reflux/vomiting when the tube is in place. The ph probe would come back positive, even if he doesn't necessarily have reflux without the tube. Since the probe will send back a false positive, and since we already know we aren't doing the fundo, we're not going to do this last test. The GI doctor we spoke to this morning is completely on the same page. Holden will only be having the Ladds procedure and the gtube placed in surgery. Now we'll just wait for the doctors to coordinate and set a date. We hope to have something set by tomorrow, but we'll see.

I don't write a lot about my other two equally fabulous kids on here because this is Holden's blog, meant to follow and document his journey. However, Kaitlyn- my oldest, needs a few extra prayers this week. She has a major test tomorrow, for something she really wants. I know that all will work out how it's supposed to, but please say an extra prayer for her this week if you happen to be praying for our family. As always, thank you. We are truly grateful to be so very blessed!